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A Real World Study to Globally Assess Disease Burden in Adolescent and Adult Participants With Alopecia Areata, Vitiligo, or Hidradenitis Suppurativa

View on ClinicalTrials.gov ↗

At a glance

What the study gets you: Health checks and monitoring — no treatment given
Type of study: Observational (no treatment given)
Time in hospital: In-person visits at study sites — visit count not specified by the sponsor
Drug or intervention: Not specified by the sponsor
How long the study runs: Study runs about 23 months (dates as stated)
About the drug or intervention: Not specified by the sponsor
Patient visit burden: Not specified by the sponsor

In plain English

This is a real-world study run by AbbVie. It looks at how three skin and hair conditions affect people's lives: non-segmental vitiligo (NSV, a condition causing pale patches of skin), alopecia areata (AA, hair loss), and hidradenitis suppurativa (HS, painful lumps under the skin). The study aims to assess the overall burden of these conditions in teenagers and adults around the world.

Who can take part

A doctor has confirmed you have non-segmental vitiligo (NSV), or moderate to severe alopecia areata (AA), or moderate to severe hidradenitis suppurativa (HS)
You can understand the study questionnaires, with help from a carer if needed for teenagers

Who may not be able to

You are taking part in an interventional clinical trial (one that tests a treatment) at the time of the study visit — taking part in another non-interventional study or registry does not rule you out
You cannot or do not want to follow the study requirements and complete the patient questionnaires

What taking part involves

• Not stated — ask the trial team

Time commitment: Not stated — ask the trial team. The study involves completing questionnaires (patient-reported outcomes), with caregiver support for adolescents if needed.

Plain-English summary (AI-generated) from registry data. Not eligibility advice — only the trial team can confirm whether you can take part. Use the eligibility checker to see how your health profile matches this trial.

Type of study: Observing health over time
Ages: 12 Years and over
Who: All
Number of participants: 2,795
Started: 2025-09-02
Last checked: 2026-02

Plain English Summary

What is this study?

• Testing a new treatment for non-segmental vitiligo (nsv)
• Clinical study - 2,795 participants
• This study is to assess the burden of disease in adolescent and adult participants with moderate or severe alopecia areata (AA), non-segmental vitiligo (NSV), or moderate to severe hidradenitis suppurativa (HS) in a large global real-world participant population

Who can take part?

• Ages 12 Years and over
• Diagnosed with non-segmental vitiligo (nsv)

Where?

• London - University Hospital Lewisham /ID# 279233
• Oxford - Oxford University Hospitals - John Radcliffe Hospital /ID# 279052
• Leeds - Leeds Teaching Hospitals NHS Trust /ID# 278524
• Wakefield - Mid Yorkshire Teaching NHS Trust /ID# 279190
• +4 more UK sites

This is a simplified summary. Always discuss with your doctor before making any decisions.

About This Trial

This study is to assess the burden of disease in adolescent and adult participants with moderate or severe alopecia areata (AA), non-segmental vitiligo (NSV), or moderate to severe hidradenitis suppurativa (HS) in a large global real-world participant population.

Non-Segmental Vitiligo (NSV)Alopecia AreataHidradenitis Suppurativa

How this trial compares with your answers

Answer 2 more questions to improve match

What we know so far

Condition· Matched your search

Age· Tell us your age for better matching

Gender· Tell us your sex for better matching

Still need:

• Tell us your age for better matching
• Tell us your sex for better matching

Preliminary match based on your answers. Full eligibility requires on-site assessment including medical history, physical exam, and lab tests. This does not guarantee enrolment.

Eligibility at a Glance

Key info

Age: 12 Years and over
Who can join: All genders

Treatment history

Treatments you must have had:

✓ for adolescents

What the study is looking for

✓Participants with Physician-confirmed diagnosis of non-segmental vitiligo (NSV), moderate to severe Alopecia Areata...
✓Participants Ability to understand study questionnaires, with caregiver support as required for adolescents

Who cannot take part

✗Participating in interventional clinical trial(s) at time of study visit (participation in another...
✗Unable or unwilling to comply with study requirements and PRO collection

See the full criteria

Inclusion Criteria: * Participants with Physician-confirmed diagnosis of non-segmental vitiligo (NSV), moderate to severe Alopecia Areata (AA), or moderate to severe hidradenitis suppurativa (HS) * Participants Ability to understand study questionnaires, with caregiver support as required for adolescents Exclusion Criteria: * Participating in interventional clinical trial(s) at time of study visit (participation in another non-interventional study or registry does not exclude a participant from this study) * Unable or unwilling to comply with study requirements and PRO collection

Where Is This Study? (8 UK sites)

University Hospital Lewisham /ID# 279233

London SE13 6LH, United Kingdom

Recruiting

Oxford University Hospitals - John Radcliffe Hospital /ID# 279052

Oxford OX3 9DU, United Kingdom

Recruiting