At a glance
- What the study gets you
- Health checks and monitoring — no treatment given
- Type of study
- Observational (no treatment given)
- Time in hospital
- In-person visits at study sites — visit count not specified by the sponsor
- Drug or intervention
- Questionnaire (other)
- How long the study runs
- Study runs about 17 months (dates as stated)
- About the drug or intervention
- Questionnaire — other: An online annoymous questionnaire consisting of short-answer and multiple-choice questions
- Patient visit burden
- Not specified by the sponsor
- Type of study
- Observing health over time
- Ages
- 18 Years and over
- Who
- All
- Number of participants
- 50
- Started
- 2025-10-01
- Last checked
- 2026-01
Plain English Summary
What is this study?
- • Testing a new treatment for takayasu arteritis
- • Clinical study - 50 participants
- • This study aims to understand the experiences of patients with Takayasu arteritis (TAK) and how physicians manage the condition
Who can take part?
- • Ages 18 Years and over
- • Diagnosed with takayasu arteritis
Where?
- • Edinburgh - University of Edinburgh
This is a simplified summary. Always discuss with your doctor before making any decisions.
About This Trial
This study aims to understand the experiences of patients with Takayasu arteritis (TAK) and how physicians manage the condition. To achieve this, two separate questionnaires will be conducted: one for patients and one for physicians.
More detail
This study aims to investigate the experiences and perceptions of patients with Takayasu arteritis regarding their disease, as well as the perspectives of physicians regarding the management and treatment of these patients. Patients with TAK will be invited to complete an anonymous online (Online Surveys) questionnaire, which will take approximately 25 minutes and will consist of multiple-choice and short-answer questions. The questionnaire will ask about their experience with the condition, symptoms, treatments they have received, and any concerns or priorities they have regarding their care. Physicians who treat TAK will also be invited to complete a separate online questionnaire, taking around 15 minutes and also consisting of multiple-choice and short-answer questions. This will explore how they diagnose and manage TAK, their choice of treatments, and any challenges they face in treating the condition
How this trial compares with your answers
Answer 2 more questions to improve match
What we know so far
Still need:
- • Tell us your age for better matching
- • Tell us your sex for better matching
Preliminary match based on your answers. Full eligibility requires on-site assessment including medical history, physical exam, and lab tests. This does not guarantee enrolment.
Eligibility at a Glance
Key info
- Age: 18 Years and over
- Who can join: All genders
What the study is looking for
- ✓For the patient questionnaire:
- ✓Age ≥ 18 years
- ✓A formal diagnosis of TAK
- ✓For the physician questionnaire
- ✓A physician involved in the management/decision-making for patients diagnosed with TAK
Who cannot take part
- ✗For the patient questionnaire:
- ✗Age \< 18 years
- ✗Lack of a formal diagnosis of TAK
- ✗Patients without mental capacity or willingness to provide agreement to take part
- ✗Not UK based
See the full criteria
Where Is This Study? (1 UK site)
University of Edinburgh
Edinburgh, United Kingdom
How to Get in Touch
Alexandra Armstrong
Sponsor contactCONTACT