At a glance
- What the study gets you
- Health checks and monitoring — no treatment given
- Type of study
- Observational (no treatment given)
- Time in hospital
- In-person visits at study sites — visit count not specified by the sponsor
- Drug or intervention
- NONE - observational study (other)
- How long the study runs
- Study runs about 14 months (dates as stated)
- About the drug or intervention
- NONE - observational study — other: N/A as observational study
- Patient visit burden
- Not specified by the sponsor
- Type of study
- Observing health over time
- Ages
- 18 Years and over
- Who
- All
- Number of participants
- 120
- Started
- 2026-02-19
- Last checked
- 2026-01
Plain English Summary
What is this study?
- • Testing a new treatment for inflammatory arthritis
- • Clinical study - 120 participants
- • Palliative Care (PC) focuses on maximising quality of life and care for patients and their families in the last 1000 days of life
Who can take part?
- • Ages 18 Years and over
- • Diagnosed with inflammatory arthritis
Where?
- • Bath - Dorothy House Hospice
This is a simplified summary. Always discuss with your doctor before making any decisions.
About This Trial
Palliative Care (PC) focuses on maximising quality of life and care for patients and their families in the last 1000 days of life. Supportive Care (SC) is provided earlier in life for people with a long-term health condition. People living with inflammatory arthritis, (such as rheumatoid arthritis) can experience ongoing pain, stiffness, limitations in their joints, and intrusive fatigue. This impacts daily living activities and emotional well-being. People with inflammatory arthritis would value support to manage symptoms across the course of their disease. They would like PC healthcare professionals (HCPs) to understand their conditions better, so they can live well to the end of their lives. Aims: The investigators will explore the potential role of Palliative and Supportive Care (PSC) for people with inflammatory arthritis. The investigators will describe any unmet patient need. The investigators will develop clinical and research recommendations to help people with inflammatory arthritis live well over the course of their disease. Plan: The investigators research will be conducted in three studies: Study 1: The investigators will conduct 1:1 online interviews with people with inflammatory arthritis to understand how PSC is perceived by them, and what their views are on how PSC may support them to live well. Study 2: The investigators will send an online survey to Rheumatologists, Primary Care, Community and PC HCPs, to understand: * if and how they work together currently; * their views on the role of PSC supporting people with inflammatory arthritis to live well. Study 3: The investigators will conduct online focus groups with volunteers from Studies 1 and 2, representatives from relevant national charities/organisations, and people who commission health services. Together the group will discuss the research findings and agree: * what the gap in patient care is; * recommendations for future clinical practice and research; * the key areas of importance for patients which should be measured in future work
How this trial compares with your answers
Answer 2 more questions to improve match
What we know so far
Still need:
- • Tell us your age for better matching
- • Tell us your sex for better matching
Preliminary match based on your answers. Full eligibility requires on-site assessment including medical history, physical exam, and lab tests. This does not guarantee enrolment.
Eligibility at a Glance
Key info
- Age: 18 Years and over
- Who can join: All genders
What the study is looking for
- ✓Adults (\> 18 years) with a diagnosis of arthritis (Rheumatoid, Psoriatic or Juvenile Idiopathic) or Axial...
- ✓able to understand and communicate in verbal and written English (or via an interpreter nominated by the participant...
- ✓in receipt, or not in receipt of Palliative Care services
- ✓access to Microsoft Teams or a telephone
- ✓consent to sharing preferred contact details
Who cannot take part
- ✗Cognitive impairment that impedes communication
- ✗non-English speaker (should an interpreter not be available).
See the full criteria
Where Is This Study? (1 UK site)
Dorothy House Hospice
Bath BA15 2LE, United Kingdom
How to Get in Touch
Dr Sharon Grieve Research Development and Delivery Lead, DPhil
Sponsor contactCONTACT